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Wakefield's Wake, Part 7: Blowback can be fierce and frightening for autism-vaccine stories

Wakefield's Wake, Part 7: Blowback can be fierce and frightening for autism-vaccine stories

Picture of William Heisel

A good friend of mine read my recent posts about Andrew Wakefield and the controversy over whether vaccines have any role in causing autism and asked me whether I was concerned for my safety.

Studies repeatedly show that vaccines don't cause autism, but, in large part because of Wakefield's faulty and now-discredited 1998 study that suggested a link, there is an ardent minority of parents, advocates and scientists who believe that vaccines – especially the measles, mumps and rubella (MMR) vaccine – are poison.

So my friend said to me, "Is this safe for you to be writing about? For your family? For your job security?"

I was stunned. Not only because of the implication but also because this friend is not even from the United States or the United Kingdom, where the debate over vaccines has raged so hotly.

It underscored for me that journalists who take on vaccine conspiracy theories and other controversial topics need to prepare themselves and their editors for blowback.

Parents who are advocating for their children are fighters, as they should be. But they can start to develop an us-versus-them mentality.

The Chicago Tribune found this out when reporting its excellent series about scientifically unsound treatments for autism. The blowback was fierce and frighteningly personal. The anti-vaccine Age of Autism blog posted a digitally created image of reporter Trine Tsouderos at a Thanksgiving feast with a baby being served.

Science writer Amy Wallace was treated with the same photo, only with her face slapped into the gruesome scene. She described her struggles with anti-vaccine advocates, including a lawsuit, in a great piece for ReportingOnHealth. If you want to see how journalistic digging like Wallace's can make people extremely angry, look at some of the comments posted below Wallace's thoughtful commentary.

Michael Shermer nicely summed up this phenomenon in his Wall Street Journal review of The Panic Virus, Seth Mnookin's new book about the autism-vaccine scare:

Parents whose children are diagnosed with autism (A) search for a probable cause; they remember that they had their children vaccinated (B) and forgivably assume that the correlation is causal. These parents worry for their children, enough sometimes to sue the companies that manufacture the vaccines.

Shermer goes on to show how that fear already has contributed to a public health threat:

Rates of unvaccinated children in New York and Connecticut, for example, doubled between 2005 and 2010. In New Jersey, they rose by 800%. In many other places around the country, they have fallen below the herd immunity rate of about 90%. The consequences are tragically predictable: Mumps and measles are on the comeback trail, and if this medical mass hysteria is not checked soon we could face a terrible resurgence in these deadly diseases, which killed hundreds of millions of people before the invention of vaccines.

Parents of children who have an autism spectrum disorder have had to make a choice. If they have chosen to believe in the vaccine-autism connection and the conspiracy theory that paints Wakefield as a martyr for the cause, then they have invested a lot of intellectual and emotional capital in a fraud. It's tough to dial back from that.

Parents who don't have a child with a disorder but who have chosen to keep their child unvaccinated also have invested in the conspiracy theory. They have decided that their child is at a greater risk of becoming autistic from a vaccine than they are at risk of getting a disease that may kill them.

The anti-vaccine advocates have invested even more in the scare. They have put a lot of capital – personal and financial – into the cause. Now that Wakefield's vaccine theories have been debunked, these parents and advocates will be looking for any opportunity to justify the dangerous choices they have made.

"I'm afraid that that brave journalists who bring up evidence for their audience about what they think people should know and people have the right to know may end in trouble for the journalist," my friend wrote me. "I hope this is not the case."  

Have a comment? Leave it below or send me a note at askantidote@gmail.com.

Related Posts:

Amy Wallace on Covering Vaccines: science, policy and politics in the minefield

Wakefield's Wake, Part 1: Media should help undo damage from vaccine-autism hoax

Wakefield's Wake, Part 2: Passionate parents of autistic children can be tricky sources

Wakefield's Wake, Part 3: Trust parents of autistic kids, but verify stories with health records

Wakefield's Wake, Part 4: Overcome confidentiality rules used to hide shaky science

Wakefield's Wake, Part 5: Treat advocacy groups with a healthy dose of skepticism

Don't call it a witch hunt: Scientists who perpetrated autism-vaccine scare should be called out

 

 

 

Comments

Picture of Liz Ditz

Dear Bill,

This is an excellent series, for which I thank you.

The one point that has not been made either in your series or in other coverage I've seen:

Many, if not the majority, of parents of children with autism reject the "autism is vaccine injury" meme.  Most of the adults with autism I've spoken with also reject the "autism is vaccine injury" meme.  Many parents and most adults with autism also reject the "autism is a tragedy (or tsunami going to swamp society)" meme.

Here are a few of those parents who have publicly rejected both memes, together with contact information for readers' future use in convering (a) autism & vaccine stories (b) autism stories generally.

Ken Reibel of Autism News Beat http://autism-news-beat.com/

Keve Leitch and "Sullivan" of LeftBrainRightBrain http://leftbrainrightbrain.co.uk/ (Leitch is a UK citizen and Sullivan is a US citizen)

Shannon Rosa of Squidalicious http://www.squidalicious.com/

Emily Willingham of A Life Less Ordinary http://daisymayfattypants.blogspot.com/ and The Biology Files http://biologyfiles.fieldofscience.com/

(disclosure: Shannon and Emily are my co-editors at the The Thinking Person's Guide to Autism)

Picture of William Heisel

Liz,

Thanks for your note. These are all great points and interesting voices that you cite. There were a lot of issues that I wish I had been able to fit into the posts, and I am certain to revisit the topic.

Bill

Picture of

First, I think you should read the Lancet paper which it appears you haven't, or you are repeating the same misinformation that has been previously "reported" without doing your own homework.

The paper concluded nothing regarding the MMR, only that bowel disease was present in a high percentage of the 12 children and that more investigation was needed.

Also, your reference to some type of "blowback" is every bit as ridiculous as the recent tragedy in Tucson was attempted to be twisted into some connection with a certain political party when it was clearly just a mentally unstable man.

Here is an link to a PBS video interview that may give you some perspective in relation to truth:

http://injectingsense.blogspot.com/2011/01/level-of-debate-just-got-rais...

You are interested in the truth?

 

 

Picture of William Heisel

There were so many posts on this topic, that I probably should have included a timeline to keep everything straight for readers. As I explained in one of the earlier posts, Wakefield used the now retracted study to propose a link between the MMR vaccine and a bowel-brain disorder that caused behavioural symptoms. As I wrote, "One of the parents of one of the autistic children studied by Wakefield was actually in business with Wakefield, Deer found. Before his controversial – and now retracted – study was even published, Wakefield was creating a business venture that would produce a diagnostic test for the bowel-brain disorder he said caused autism and would create a measles vaccine he claimed would be safer." Wakefield has used that paper to purport an autism-vaccine link. His own book is titled "Callous Disregard: Autism and Vaccines -- The Truth Behind a Tragedy."

Picture of

Well,  does this mean that every doctor who creates a cure or test for an illness is "creating a business venture?"  Please share your link indicating he would "create a measles vaccine" he claimed would be safer.   

You said:

"Wakefield has used that paper to purport an autism-vaccine link." 

 

Even in Brain Deer's tabloid reporting, he says that the MMR/Autism link was the parents (and then the media hype took over) :

http://www.timesonline.co.uk/tol/news/uk/article1026449.ece?token=null&o...

“Onset of behavioural symptoms was associated, by the parents, with measles, mumps and rubella vaccination in eight out of the 12 children.”

 

Again, read the Lancet paper:

http://www.ncbi.nlm.nih.gov/pubmed/9500320

INTERPRETATION:

 "We identified associated gastrointestinal disease and developmental regression in a group of previously normal children, which was generally associated in time with possible environmental triggers."

Please show me where this says anything about an autism-vaccine link?

 

Picture of William Heisel

I'm not sure how much you have read about what Wakefield himself says about a vaccine-autism link. He has made that connectionr repeatedly. But you don't have to believe me. Listen to Dr. Wakefield himself talk about it on the Today Show. He says, "What it does not detract from is the fact that there are millions of children out there suffering and the fact that vaccines can cause autism." The video can be found on the website promoting Dr. Wakefield's book: http://www.callousdisregard.org/

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