Skip to main content.

Forum Highlights the Many Challenges to Taking on Valley Fever

Valley Fever: The Search for an Effective Vaccine 

Fellowship Story Showcase

Forum Highlights the Many Challenges to Taking on Valley Fever

San Joaquin Valley residents, doctors and experts demanded improvements in the way valley fever is studied at a town hall sponsored by California state Sen. Michael Rubio. This story is part of the ReportingonHealth Collaborative's "Just One Breath" investigative series on valley fever in California's Central Valley.

Forum Highlights the Many Challenges to Taking on Valley Fever
Reporting on Health Collaborative
Saturday, October 6, 2012

By Rebecca Plevin and Rachel Cook
Reporting on Health Collaborative

San Joaquin Valley residents, doctors and experts demanding improvements in the way valley fever is studied, diagnosed and treated shared their concerns during a town hall meeting hosted by state Sen. Michael Rubio, D-Shafter, in Bakersfield on Friday.

Experts stressed the need for earlier diagnosis of the disease. That requires better education about the disease for providers and the public, they said.

Rubio's town hall followed publication of a continuing series of stories by The Californian and its partners in the Reporting on Health Collaborative about the skyrocketing number of valley fever cases and the resulting societal costs and personal hardships. You can see live video of the town hall here.

The series continues Sunday with a look at the challenges of developing a valley fever vaccine. You can read the past stories at www.bakersfieldcalifornian.com/special-sections/just-one-breath.

"To diagnose valley fever, first of all you have to suspect it," said Dr. Augustine Munoz, director of pulmonary medicine at Kern Medical Center. "If you don't suspect it, you'll never find it."

Patients often experience a wide variety of symptoms, leading doctors unfamiliar with valley fever to misdiagnose the illness. For some people, that means undergoing unnecessary surgeries and courses of antibiotics, which have no impact on the fungus. For others, that means their disease goes undetected and untreated.

Doctors also called for better treatments for the disease. Munoz spoke about the harsh impact of the drugs, which patients may need to take for long periods of time.

Public health experts and researchers emphasized the need for more funding for valley fever-related research, including developing better tests to identify the disease and a vaccine.

At the federal level, the National Institutes of Health has largely neglected research funding for the disease. Valley fever-related research projects have received about $25 million over the past 12 years. By comparison, West Nile virus has received $585 million from NIH since 2000.

Meanwhile, policymakers highlighted the costs the disease imposes on taxpayers and the state.

Dr. Michael MacLean, Kings County health officer, spoke of the cost of treating inmates who contract valley fever in the state's prisons. The state prison system foots a bill of about $23.4 million each year for sending inmates with valley fever to hospitals outside the prison, guarding these patients and covering their antifungal treatments.

He also expressed concern that blacks are disproportionately incarcerated and also are at greater risk for the serious disseminated form of the disease.

A report by California Correctional Health Care Services found that the rate of black inmates who died from valley fever was twice that of non-black California inmates.

"We should have concern that there is a very significant racial disparity going on with respect to inmates in California and valley fever," MacLean said.

The forum also touched on creating best practices for diagnosing and reporting valley fever. Kirt Emery, Kern County Public Health Services Department epidemiologist, talked about the efforts to better track the disease.

"We need other counties to step to the plate and fill out that form (reporting valley fever). We need a consistent form that people are going to fill out," Emery said.

Those at the meeting encouraged Rubio to help raise the profile of the disease and establish funding for research.

"We need everybody, whether they're infected or not, to write their state representatives for state and federal funding for research and development," said Tammy Schaefer of from San Luis Obispo County. She described how her husband, Todd, was very ill and repeatedly misdiagnosed, until it was determined he had spinal fungal meningitis.

Reading from a handwritten note, 7-year-old Emily Gorospe, of Delano, described how the disease has changed her life, limiting how much she can dance and forcing her to stay inside during recess on days when air quality is poor.

"The X-rays every month show the spot (on my lungs) is smaller. I want it to disappear so I can do the things I used to love to do," she said.

Rubio pledged to work with local, state and federal officials to increase public awareness of the disease, to develop better and more effective ways to treat the disease once it's diagnosed and "ultimately to find that vaccine so we can prevent it and hopefully eradicate it once and for all."

He also proposed creating a local research institution that could investigate valley fever.

"Let's have a competition: Who can come up with a better test so we can achieve it? Who can come up with a better treatment so we can have a cost-effective way of treating this very serious disease?" he said.

Related Content:

Just One Breath: Valley fever cases reach epidemic levels, but harm remains hidden 

Valley Fever Costs Mount for Patients and Taxpayers

Valley Fever Vaccine Stalls

Just One Breath: Five Tips for Writing about Health Costs

Photo credit: Seven-year-old Emily Gorospe, who has valley fever, cradles her doll as she rests in the arms of her mother, Valerie, at the Kern County Public Health Services Department during a town hall meeting on valley fever. By Felix Adamo / The Californian

About This Series

This project results from an innovative reporting venture – the Center for Health Journalism Collaborative – which currently involves the Bakersfield Californian, Radio Bilingüe in Fresno, Valley Public Radio in Fresno and Bakersfield, Vida en el Valle in Fresno, Hanford Sentinel, the Voice of OC in Santa Ana, the Arizona Daily Star in Tucson, La Estrella de Tucsón and the Center for Health Journalism. The collaborative is an initiative of the Center for Health Journalism at the University of Southern California’s Annenberg School for Communication and Journalism.

RELATED STORIES

A Fever in the Dust

Although still unknown outside of the American west, valley fever is a severe fungal infection — and its territory may expand as the climate warms.

In 2018, Governor Jerry Brown Allocated $8 million to Cocci Research And Awareness. How Has It Been Spent?

In his final 2018-2019 budget former California Gov. Jerry Brown allocated $8 million in state funding toward combating valley fever, split evenly between the University of California system and the new Valley Fever Institute at Kern Medical in Bakersfield. Here’s how that money’s been spent.

Following Funding Boosts, Momentum Builds Around Valley Fever Research

Researchers have been trying to understand valley fever for decades, but the playing field remained small until recently.

‘Eureka moment’ in valley fever case paves way for new research, treatment options

UCLA's Dr. Manish Butte still remembers the day almost two years ago when he met a young boy who could barely walk or talk and needed a feeding tube to eat. He was suffering from a life-threatening case of valley fever.

Valley fever medication poses added risk for pregnant women

Research suggests an alarming link between a common drug used for valley fever and birth defects. The disease also tends to be more severe in pregnant women.

Legislation caps momentous year in battle against valley fever

Recently signed legislation capped a big year for efforts to combat a regional disease long overlooked by lawmakers.

For valley fever survivors, a growing need: wigs

The antifungal drugs used to treat valley fever can cause hair loss. With the number of valley fever cases on the rise, a wig shop in Bakersfield, Calif., is helping women feel better about themselves.

California budget boosts funding for valley fever

The budget includes $8 million for research and outreach into the disease, caused by inhaling spores that grow in arid soil.